Funding Awarded for Teen-Focused CKD Program

3C Institute and investigators at UNC School of Medicine have been awarded Phase II SBIR funding from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to develop My Kidney Guru, a self-paced, adaptive education e-learning program to meet the needs of adolescents with chronic kidney disease (CKD). The aim of the fully developed program is to increase treatment adherence and improve self-management skills in adolescents with kidney disease. 

My Kidney Guru combines the medical expertise of Dr. Maria Ferris, UNC School of Medicine, with 3C Institute’s experience creating state-of-the-art, personalized, interactive e-training programs. In addition to addressing attention, engagement, and motivational barriers to adolescents’ understanding and self-managing of their kidney disease, My Kidney Guru leverages video modeling of self-management skills and interactive personalized tools to increase adoption and effective use of those skills and strategies, including virtual simulations for active practice, self-reflection, and personalized feedback on comprehension and application of those skills (all features of the DeLP online learning platform).

Development will be guided by an iterative development process informed by focus groups and preliminary testing. The preliminary efficacy of the final product will be evaluated through a single arm clinical trial.

 

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    DEB CHILDRESS, PHD

    Chief of Research and Learning Content

    BIOGRAPHY

    Dr. Childress obtained her PhD in psychology at the University of North Carolina at Chapel Hill. Prior to coming to 3C Institute, she served as a research associate and a postdoctoral fellow in the Carolina Institute for Developmental Disabilities at the University of North Carolina at Chapel Hill working on a longitudinal imaging study aimed at identifying the early markers of autism through behavioral and imaging methodologies. She has 19 years of autism research experience, during which she has examined the behavioral, personality, and cognitive characteristics of individuals with autism and their family members. Dr. Childress also has experience developing behavioral and parent report measurement tools, coordinating multi-site research studies, and collecting data from children and families. She has taught courses and seminars in general child development, autism, and cognitive development at the University of North Carolina at Chapel Hill.

    Expertise

    • autism
    • early development
    • behavioral measurement
    • integrating behavioral and biological measurement

    Education

    • Postdoctoral fellowship, Carolina Institute for Developmental Disabilities (Institutional NRSA-NICHD), University of North Carolina at Chapel Hill
    • PhD, developmental psychology, University of North Carolina at Chapel Hill
    • BS, psychology (minor in sociology), University of Iowa

    Selected Publications

    • Elison, J. T., Wolff, J. J., Heimer, D. C., Paterson, S. J., Gu, H., Hazlett, H. C., Styner, M, Gerig, G., & Piven, J. (in press). Frontolimbic neural circuitry at 6 months predicts individual differences in joint attention at 9 months. Developmental Science.
    • Wassink, T. H., Vieland, V. J., Sheffield, V. C., Bartlett, C. W., Goedken, R., Childress, D. & Piven, J. (2008). Posterior probability of linkage analysis of autism dataset identifies linkage to chromosome 16. Psychiatric Genetics,18(2),85-91.
    • Losh, M., Childress, D., Lam K. & Piven, J. (2008). Defining key features of the broad autism phenotype: A comparison across parents of multiple- and single-incidence autism families. American Journal of Medical Genetics (Neuropsychiatric Genetics), 147B(4):424-33.
    • Wassink, T. H., Piven, J., Vieland, V. J., Jenkins, L., Frantz R., Bartlett, C. W., Goedken, R., … Sheffield, V.C. (2005). Evaluation of the chromosome 2q37.3 gene CENTG2 as an autism susceptibility gene. American Journal of Medical Genetics (Neuropsychiatric Genetics), 136, 36-44.
    • Barrett, S., Beck, J., Bernier, R., Bisson, E., Braun, T., Casavant, T., Childress, D., … Vieland, V. (1999). An autosomal genomic screen for autism. American Journal of Medical Genetics (Neuropsychiatric Genetics), 88, 609-615. doi: 10.1002/(SICI)1096-8628(19991215)88:63.0.CO;2-L
    • Piven, J., Palmer, P., Landa, R., Santangelo, S., Jacobi, D. & Childress, D. (1997). Personality and language characteristics in parents from multiple-incidence autism families. American Journal of Medical Genetics (Neuropsychiatric Genetics), 74, 398-411.
    • Piven, J., Palmer, P., Jacobi, D., Childress, D. & Arndt, S. (1997). Broader autism phenotype: Evidence from a family history study of multiple-incidence autism families. American Journal of Psychiatry, 154, 185-190.