With Quest, the Annie E. Casey Foundation Gives Youth a Voice

A primary goal of Quest, our online data collection platform, is to give youth a voice in the assessment process. Too often, youth are left out of that process, with adults providing the data that guide decisions about young people’s lives. Before online survey platforms, administering paper-and-pencil surveys was too expensive and time-consuming to collect data with youth. The rise of online survey systems has decreased these costs, but many have user interfaces (UI) that are inappropriate for youth. Their formats—weighed down by plain text, with several items per page—may be fine for adults, but with youth, motivation to respond, attention, and data quality all suffer. And the literacy demands still prevent younger youth from being able to complete online surveys.

Quest solves these problems. It’s the only child-friendly online data collection platform with customizable survey components and formatting that enables high-quality data collection with youth as young as 5 years old.

Other Online Survey Platforms

Many online survey platforms have user interfaces that are inappropriate for youth. Motivation to respond, attention, and data quality all suffer. Literacy demands prevent younger youth from completing online surveys.

Quest Is the Solution

Quest is the only child-friendly online data collection platform with customizable survey components and formatting that enables high-quality data collection with youth as young as 5 years old.
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Partnering with the Annie E. Casey Foundation

Since we began our partnership with the Annie E. Casey Foundation (AECF) in 2020, it has used Quest to give youth a voice in community-wide assessments through the Youth Experience Survey (YES). Previously, the YES was administered with paper and pencil. But AECF recognized it needed to use an online platform to scale the assessment nationally. Further, it recognized the need to engage youth in the development process so that both the assessment language and the survey format would fit the survey’s young audience.

AECF engaged in participatory research with adolescent youth over several years to gather feedback on survey items and the UI. The result is a visually appealing, easy-to-navigate, inclusive online survey.

In addition, we worked with Casey to create an online dashboard for community partners to more easily access and use collected data, including automated scoring, a visually engaging and informative data dashboard, and custom reports with meaningful and actionable results.

More than a thousand students across three school districts participated in the initial release of the online YES. AECF is now working with communities across the nation to broadly scale the YES. If you’re interested in learning more about AECF’s work, visit the Evidence2Success Tool Kit.

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    DEB CHILDRESS, PHD

    Chief of Research and Learning Content

    BIOGRAPHY

    Dr. Childress obtained her PhD in psychology at the University of North Carolina at Chapel Hill. Prior to coming to 3C Institute, she served as a research associate and a postdoctoral fellow in the Carolina Institute for Developmental Disabilities at the University of North Carolina at Chapel Hill working on a longitudinal imaging study aimed at identifying the early markers of autism through behavioral and imaging methodologies. She has 19 years of autism research experience, during which she has examined the behavioral, personality, and cognitive characteristics of individuals with autism and their family members. Dr. Childress also has experience developing behavioral and parent report measurement tools, coordinating multi-site research studies, and collecting data from children and families. She has taught courses and seminars in general child development, autism, and cognitive development at the University of North Carolina at Chapel Hill.

    Expertise

    • autism
    • early development
    • behavioral measurement
    • integrating behavioral and biological measurement

    Education

    • Postdoctoral fellowship, Carolina Institute for Developmental Disabilities (Institutional NRSA-NICHD), University of North Carolina at Chapel Hill
    • PhD, developmental psychology, University of North Carolina at Chapel Hill
    • BS, psychology (minor in sociology), University of Iowa

    Selected Publications

    • Elison, J. T., Wolff, J. J., Heimer, D. C., Paterson, S. J., Gu, H., Hazlett, H. C., Styner, M, Gerig, G., & Piven, J. (in press). Frontolimbic neural circuitry at 6 months predicts individual differences in joint attention at 9 months. Developmental Science.
    • Wassink, T. H., Vieland, V. J., Sheffield, V. C., Bartlett, C. W., Goedken, R., Childress, D. & Piven, J. (2008). Posterior probability of linkage analysis of autism dataset identifies linkage to chromosome 16. Psychiatric Genetics,18(2),85-91.
    • Losh, M., Childress, D., Lam K. & Piven, J. (2008). Defining key features of the broad autism phenotype: A comparison across parents of multiple- and single-incidence autism families. American Journal of Medical Genetics (Neuropsychiatric Genetics), 147B(4):424-33.
    • Wassink, T. H., Piven, J., Vieland, V. J., Jenkins, L., Frantz R., Bartlett, C. W., Goedken, R., … Sheffield, V.C. (2005). Evaluation of the chromosome 2q37.3 gene CENTG2 as an autism susceptibility gene. American Journal of Medical Genetics (Neuropsychiatric Genetics), 136, 36-44.
    • Barrett, S., Beck, J., Bernier, R., Bisson, E., Braun, T., Casavant, T., Childress, D., … Vieland, V. (1999). An autosomal genomic screen for autism. American Journal of Medical Genetics (Neuropsychiatric Genetics), 88, 609-615. doi: 10.1002/(SICI)1096-8628(19991215)88:63.0.CO;2-L
    • Piven, J., Palmer, P., Landa, R., Santangelo, S., Jacobi, D. & Childress, D. (1997). Personality and language characteristics in parents from multiple-incidence autism families. American Journal of Medical Genetics (Neuropsychiatric Genetics), 74, 398-411.
    • Piven, J., Palmer, P., Jacobi, D., Childress, D. & Arndt, S. (1997). Broader autism phenotype: Evidence from a family history study of multiple-incidence autism families. American Journal of Psychiatry, 154, 185-190.